The recent Op-Ed regarding genetic testing is right - to some degree. The main concerns however, are more nuanced than just false positives or negatives. Rather, it's that the average consumer, and often even the average physician, are not able to effectively deal with the deluge of the genetic data provided by the testing services: most of us lack the statistical proficiency to grasp the varied risks assessed to the patient, or an appreciation of the highly personal and revealing nature of genetic information. With the growing importance of genetics in our lives, efforts should be directed at introducing these concepts to undergraduates --the future patients and their doctors, in a safe and controlled environment, as we have seen in some initial forays in this direction at Berkeley and Stanford.
Dov Greenbaum JD PhD
Mark Gerstein PhD
Unpublished Letter to the Editor
The promise and peril of home genetic test kits
April 29, 2011
OpED, LA TIMES
http://www.latimes.com/news/opinion/opinionla/la-ed-genetic-20110429,0,5006081.story
Saturday, May 7, 2011
Sunday, February 6, 2011
Letter RE: Miguel Helft and Claire Cain Miller's "1986 Privacy Law Is Outrun by the Web" NY TIMES
Helf and Miller suggest that current federal privacy laws are
outdated in their lack of protection for our online communications.
The laws are outdated, but not because they fail to fully protect our
email, tweats, and updates. Rather, in a society where our most banal
musings are instantly shared with the world, the law fails to account
for the societal shift that substantially devalues the privacy of most
things thought to be too personal twenty-five years ago.
Dov Greenbaum, JD MPhil PhD
Mark Gerstein, PhD
Unpublished Letter to the Editor
Miguel Helft and Claire Cain Miller's "1986 Privacy Law Is Outrun by the Web"
NY TIMES(1/10/2011)
http://www.nytimes.com/2011/01/10/technology/10privacy.html
outdated in their lack of protection for our online communications.
The laws are outdated, but not because they fail to fully protect our
email, tweats, and updates. Rather, in a society where our most banal
musings are instantly shared with the world, the law fails to account
for the societal shift that substantially devalues the privacy of most
things thought to be too personal twenty-five years ago.
Dov Greenbaum, JD MPhil PhD
Mark Gerstein, PhD
Unpublished Letter to the Editor
Miguel Helft and Claire Cain Miller's "1986 Privacy Law Is Outrun by the Web"
NY TIMES(1/10/2011)
http://www.nytimes.com/2011/01/10/technology/10privacy.html
Letter RE: John Tierney's "Heavy Doses of DNA Data, With Few Side Effects" NY TIMES 1/17/20
The lack of response by consumers to their genetic tests, as reported
by John Tierney, is disconcerting. Rather than signifying admirable
levelheadedness, the fact that people neither worried about results
nor were spurred to take up preventive measures suggests that the
general public has yet to become sufficiently engaged in genetic
information to the extent hoped for by the genetic testing industry --
or to the extent necessary to make testing effective on a large-scale.
It is also symptomatic of the public's general disengagement from
numerical and statistical findings.
Dov Greenbaum, JD PhD
Mark Gerstein, PhD
Unpublished letter in response to
John Tierney's "Heavy Doses of DNA Data, With Few Side Effects"
http://www.nytimes.com/2011/01/18/science/18tier.html
NY TIMES 1/17/20
Similar post in response to
Eryn Brown's "Genetic testing doesn't spook patients, study finds"
LA TIMES (1/16/2011)
http://articles.latimes.com/2011/jan/16/health/la-he-dtc-gene-tests-20110113
X
by John Tierney, is disconcerting. Rather than signifying admirable
levelheadedness, the fact that people neither worried about results
nor were spurred to take up preventive measures suggests that the
general public has yet to become sufficiently engaged in genetic
information to the extent hoped for by the genetic testing industry --
or to the extent necessary to make testing effective on a large-scale.
It is also symptomatic of the public's general disengagement from
numerical and statistical findings.
Dov Greenbaum, JD PhD
Mark Gerstein, PhD
Unpublished letter in response to
John Tierney's "Heavy Doses of DNA Data, With Few Side Effects"
http://www.nytimes.com/2011/01/18/science/18tier.html
NY TIMES 1/17/20
Similar post in response to
Eryn Brown's "Genetic testing doesn't spook patients, study finds"
LA TIMES (1/16/2011)
http://articles.latimes.com/2011/jan/16/health/la-he-dtc-gene-tests-20110113
X
Thursday, January 27, 2011
Word Cloud of this Blog
amounts better blog brin collecting com comparatively costs cure data dov forgetting gerstein greenbaum hits http information internet issue jd l2e l2echk0mg labels letter magazine mark means methodology mr ny parkinson pay phd posts privacy quest rare research response science search sergey stem times unpublished unpublishedletter wade web wired www
created at TagCrowd.com
Trafficcams New Haven to Merritt Parkway
* New Haven: I-91 at Trumbull St.
Starting out, right before junction with I-95; closest lane going South on I-91 towards I-95; this spot often gets lots of traffic!
* New Haven: I-95 s/o Long Wharf Dr
Leaving New Haven. However, view is approaching New Haven, with bottom lane (to left) going N.
* New Haven: I-95 @ 1st Ave (CT-122)
One camera South from above, right after small "bridge" on N. Haven outskirts. Traffic to right is now going S.
* Bridgeport: I-95 @ River St
Right before turnoff to Merritt. Traffic closest to camera is going S.
Traffic on Google Maps
Starting out, right before junction with I-95; closest lane going South on I-91 towards I-95; this spot often gets lots of traffic!
* New Haven: I-95 s/o Long Wharf Dr
Leaving New Haven. However, view is approaching New Haven, with bottom lane (to left) going N.
* New Haven: I-95 @ 1st Ave (CT-122)
One camera South from above, right after small "bridge" on N. Haven outskirts. Traffic to right is now going S.
* Bridgeport: I-95 @ River St
Right before turnoff to Merritt. Traffic closest to camera is going S.
Traffic on Google Maps
Trafficcams Merritt Parkway to Stamford
* Bridgeport: I-95 @ Myrtle Ave
Traffic closest to camera is traveling North
* Southport: I-95 s/o Mill Hill Rd
Traffic closest to camera (on right) is traveling South
* Westport: I-95 @ Hales Rd
Traffic closest to camera (on right) is traveling South. Right before Saugatuck river.
* Norwalk: I-95 @ East Ave
Traffic closest to camera (on right) is traveling South. Right before turnoff to US-7.
* I-95 s/o Tokeneke Rd (CT-136)
Camera is facing S. Traffic closest to camera (on left) is traveling North. Just south of Darien.
* I-95 n/o Elm St
Traffic closest to camera is traveling South. Near train station in Stamford. Right before "narrowing" of road.
Traffic on Google Maps
Traffic closest to camera is traveling North
* Southport: I-95 s/o Mill Hill Rd
Traffic closest to camera (on right) is traveling South
* Westport: I-95 @ Hales Rd
Traffic closest to camera (on right) is traveling South. Right before Saugatuck river.
* Norwalk: I-95 @ East Ave
Traffic closest to camera (on right) is traveling South. Right before turnoff to US-7.
* I-95 s/o Tokeneke Rd (CT-136)
Camera is facing S. Traffic closest to camera (on left) is traveling North. Just south of Darien.
* I-95 n/o Elm St
Traffic closest to camera is traveling South. Near train station in Stamford. Right before "narrowing" of road.
Traffic on Google Maps
Trafficcams South of Stamford into the City
* Hutchinson River Pkwy @ Purchase St (Exit 27)
Right before (i.e. North of) junction with i-684 and weave under I-287.
Traffic closest to camera (on left) is traveling South (looking towards Southbound traffic).
* I-95 n/o Delavan Ave
Right before (i.e. North of) junction with I-287.
Traffic closest to camera (on right) is traveling South
* Hutchinson River Pkwy s/o I-287 (Mobil Gas Station)
Camera is located in Median. It appears to be looking South, so that more prominent Northbound traffic is to the left of the picture.
* Hutchinson River Pkwy @ Cross County Pkwy
Traffic closest to camera is traveling North. View appears to be just South and East of where Cross county joins to Hutch, so closer cars are going North. There are two streams of Northward-going cars, those from the Hutch (closer) and the CC (farther). Southward-going cars are at the back.
* New England Thwy @ East Tremont Ave
Right before (i.e. N of) junction with Bruckner. Traffic closest to camera (to the right) is traveling North
* Triborough Bridges @ Manhattan Bound
Traffic closest to camera is traveling West
* FDR Dr @ 78th St
Camera located Median. Traffic to Right is going South.
Right before (i.e. North of) junction with i-684 and weave under I-287.
Traffic closest to camera (on left) is traveling South (looking towards Southbound traffic).
* I-95 n/o Delavan Ave
Right before (i.e. North of) junction with I-287.
Traffic closest to camera (on right) is traveling South
* Hutchinson River Pkwy s/o I-287 (Mobil Gas Station)
Camera is located in Median. It appears to be looking South, so that more prominent Northbound traffic is to the left of the picture.
* Hutchinson River Pkwy @ Cross County Pkwy
Traffic closest to camera is traveling North. View appears to be just South and East of where Cross county joins to Hutch, so closer cars are going North. There are two streams of Northward-going cars, those from the Hutch (closer) and the CC (farther). Southward-going cars are at the back.
* New England Thwy @ East Tremont Ave
Right before (i.e. N of) junction with Bruckner. Traffic closest to camera (to the right) is traveling North
* Triborough Bridges @ Manhattan Bound
Traffic closest to camera is traveling West
* FDR Dr @ 78th St
Camera located Median. Traffic to Right is going South.
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